advocate — The Lyme Ease Blog

Lyme Advocate Call To Action! First Public TBDWG meeting of 2021

The Tick-Borne Disease Working Group (TBDWG) has announced its first public 2021 meeting!

In this short blog post, you’ll find the links and information you need to register for the meeting and apply to comment to the TBDWG - you can submit either a written or verbal statement.

High attendance and personal accounts sharing our struggles getting proper testing and treatment will show Congress that Lyme disease research and funding are critical to the American people.

Registration closes 8/17/21

AdvocacyJenn HylaJuly 28, 2021lyme disease advocacy, advocateComment

Lyme Disease Advocacy Tips: How to Become a Lyme Disease Advocate

This week I had the opportunity to speak with members of congress during the Lyme Fly-in event. They offered us so much training, it really inspired me to create this week’s video with Lyme disease advocacy tips to show you how to become a Lyme disease advocate.

Check it out to learn how you and your loved ones can easily become Lyme disease advocates, and why it's important!

ResourcesJenn HylaFebruary 26, 2021lyme disease advocacy, advocateComment

Becoming Your Own Health Advocate: A Lyme Disease Survival Skill

Becoming your own health advocate is a survival skill for Lyme disease patients.

I was raised with the ol' rub some dirt on it, and walk it off mentality, so as I was getting sick with Lyme disease I pushed myself through all the early signs thinking they were no big deal... and I didn't press my doctors for adequate care because I trusted they knew what to do.

This is a common story in the Lyme and chronic illness community. So, in this week's vlog, I share a few tips and tools I use to take control of my doctor's appointments and ensure I get the best care possible. Check it out, and let me know what you think!

Lyme Disease Education, ResourcesJenn HylaOctober 15, 2020Lyme disease education, Lyme patient education, Lyme disease, advocateComment

Why I Stopped Treating Lyme and Started Healing From It: Healing Late-Stage Lyme Disease

After 6 years of living with Lyme disease, I gave up on treating it.

Before I go on, I should note that I am not anti-western medicine. I am a certified field biologist with a degree in environmental science. I believe in science. And I believe that western medicine has helped us tremendously in many ways. But when it comes to healing late-stage Lyme Disease, it has failed me, and millions of others horribly.

In this blog post, I describe how to take control of your health and start healing late-stage Lyme disease by focusing on healing your immune system.

ResourcesJenn HylaJanuary 28, 2020Lyme disease, self care, biohacking, advocateComment